I Think I Fell Down the Rabbit Hole


It’s such a long story and I thought I had to tell it all at once.  It’s been a long time and it’s a long story, so I’m going to take my time.  I hardly know where to begin.

I have been very sick this past year, the pancreatitis and the gastroparesis have been horrific.  My weight dropped, I still vomit constantly quickly become dehydrated and as a consequence my diabetes becomes very hard to control and I find myself in DKA.

Sarah spent the night at home in April and found me in septic shock the next morning.  This was a Friday and except for getting into the ambulance I don’t remember anything until Sunday.  This is what I’ve been told.  My temperature was 94, I was in acute kidney failure.  I had a GI bleed so I was getting blood transfusions and I think my blood pressure was 80/50.   The first thing I remember is hearing the doctor tell me they almost lost me.

Rudy went home to grab a bite a come back and the doctor called and told him to hurry back.  I didn’t know I was so sick.  My usual symptoms weren’t there.  I wasn’t vomiting but I do remember Sarah coming in my room all night and telling me I was sick.

Since November of last year I have been admitted to the hospital at least every month, several times I’d only been home for a few days when I would have to go right back in.  While I was in the hospital Rudy and Sarah moved me to the downstairs bedroom because I started randomly passing out.  Probably a good decision but I loved my huge bedroom upstairs and hate being downstairs.

For a while, I truly thought I was dying and perhaps I was.  I was also starting to feel ready to go.  Turns out I’m a lot tougher than I ever gave myself credit for.

Advertisements

Better


    It’s been a rough couple of weeks.  Rudy had to take me to the ER four times I think, and I was admitted twice.  I simply could not stop vomiting.  The phenergan doesn’t seem to be working as well as it did.  In fact one doctor gave me a shot of Thorazine, that knocked me out for a good 6 hours.  As soon as I woke up though I was still  throwing up.

     I could go into ketoacidosis very easily, fortunately I never got to that point.  The gastroparesis has gotten really bad even though my glucose readings are good. 

     I had to have some minor surgery, I was discharged the same day and damned if I wasn’t back in the hospital the next day.  I have to follow up with a gastroenterologist. 

    What scared my husband is that I went over a week without eating anything.  Chicken water and jello doesn’t count.  He’s watching me lose more and more weight and it really does bother him.

     On the other hand I’m feeling much better now and I’m looking forward to spending time with him.

     I found out more things from my hospitalization in March when I was on the ventilator.  My nurse told me I was septic and the reason I was so combative was that I wasn’t breathing.  That’s not what was in my head though.  In my head I just wanted them to slow down and tell me what they were doing.  evidently there was no time for that.  I’m still having some anxiety over all that, but it is getting better.

     I’m looking forward to this week with my husband, thanks for listening.