I love my primary care doctor, he’s been wonderful to me and actually listens. However, he’s almost 30miles away and we’re not even in the same time zone so I thought it would be good to have a pc doctor in the same town I’m in. So last week I had an appointment with a female doctor about 5 miles from here. I’d heard some good things about her.
Oh my goodness she is definitely not going to be my new doctor. She argued with me about my diabetes when I told her my endocrinologist is fighting with my insurance company to get approved for an insulin pump. She said I didn’t need one. Also told me that I wouldn’t get pancreatitis as often as I do if I would just stop drinking so much, and while she was on the subject I go to the ER far too often. I explained to her that when I do go, I’m almost always admitted to the ICU unit and I swear she looked at me and laughed. Wow, I would have walked right out if I wasn’t on my last insulin pen and needed a script for more. In fact I was out of quite a few of my meds and needed scripts for most of them. All but my pain meds because I have a pain management doctor for that. She also thought I should be off the pain meds as well and should take NSAID‘s instead. Told her the last time I tried that I ended up with a GI bleed that put me in a coma needing a blood transfusion.
So, I’m thinking my quest has only begun. I will not subject myself to a doctor who won’t even listen to me. The search continues.
A couple of months after the hospital visit in Indianapolis I got really sick again. I’m 5’6″ and got down to 110 pounds. On my large frame it looked terrible. I was having a pancreatitis flare-up and I was throwing up so much. My poor husband said I looked like I was wasting away, and told me I really needed to get back to the hospital. I knew it but was trying to avoid it. It was time.
I didn’t go to my usual hospital, I couldn’t deal with the 10 mile drive as sick as i was feeling so I went to the one right down the road from me. They were bought by another hospital and I was starting to hear good things about them. I should have known better.
When I got there the nurse was one that I knew and was very kind. I told her what had been going on with me and gave her my updated med list. The doctor came in very quickly and asked me about the dilaudid and morphine, he wanted to know if I had the bottles with me in my purse. I told him they were at home in a lock box and should I have someone bring them in. He said not to bother that he would just verify with the pharmacy. No problem though I thought it was unusual given that it had never happened before. I also gave him my history and one of the things I mentioned was that when I was on antiflamatories before I got a GI bleed so severe that it put me in a coma and when I arrived at that very hospital my blood pressure was 40/20. Easily verified because it was at the same hospial.
He ordered phenergan for the nausea and torodol for pain. Torodol is an antinflamatory which I refused due to the high risk of GI bleeding. Then he hurt me. He ordered a shot of nubain which is a narcotic with an opiate blocker, though I didn’t know that at the time. He knew and verified with my pharmacy that I was on daily narcotics, the dilaudid and the morphine. Anytime one is on daily narcotics they develops a tolerance to them and going off of them abruptly will cause physical withdrawal symptoms. The pain medicine he gave me put me in instant withdrawal thereby making me sicker. It took a good 6 hours to wear off and at that point I really did want someone to bring in my dilaudid and morphine. I looked up the nubain when I came home and the manufacturer clearly states that it is not to be used with someone who is on daily opiate/narcotic maintenance, due to the risk of withdrawal symptoms.
I’m so angry, why on earth did that doctor do that to me? What was he thinking? As a patient I have the right to appropriate pain management and that is not what I got. How could I address this in the future? I feel like anything I do or say is only going to make me appear “drug seeking.” I wasn’t seeking drugs I have them at home. I was however looking for pain relief and that is not what I got. I feel like the doctor saw my med list and made judgements based on that. The lab work supported that I was sick and in fact was admitted to the ICU. The doctor making rounds in the morning would not change the ordered meds and I can only wonder if this is the hospital culture, to avoid the use of effective pain medicine. I gave them my pain managements number and urged them to call him. Of course that did not happen. Please comment and hospitals workers please chime in. Should I avoid this hospital al together? That’s what I’m thinking now.