About

How I’m processing my chronic illnesses. I’m trying to do so with a little grace, dignity, insight, and a much-needed sense of humor.  I’m surrounded by people who love and care about me and I’m reminded daily how lucky I am.

My wonderful husband is my best friend, my lover, and my caretaker.  He wears a lot of hats.

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9 thoughts on “About

  1. HI there,
    I have multiple chronic illness to and I think we might be about the same age. I just came upon your blog and I am wondering what illnesses you have? I noticed you mention ALT levels so I am thinking liver?

    Will be back here to read more of your blog, and thanks for sharing. BTW… you are lucky to be married, I am single mom with not much of a support group AT ALL! So hard.

    • Hello to you! It’s interesting that you asked the questions that you did. I’ve been thinking how to answer those very questions the past few days. I’m 46, and have juvenile onset diabetes, chronic pancreatitis, gastroparesis, neuropathy and adhesive capsulitis, first my left shoulder then my right. The crossover on that was BAD! I has a GI bleed a couple years ago that put my in a coma and required multiple units of blood and a disappearing tumor in my pancreas which I’m so very humble gratefor for.

      I AM lucky to be married but only because in this, my 3rd endeavor, I married well. Also humble grateful for. What illnesses do you have?

  2. Hi I don’t know how Peace, Peas and Piano got on my comment, sorry for that confusion.
    I have HepC and Left Sided colonitis and I am more miserable with the second one than the first.
    I thought it would be hard to date with HepC but throw the other one on top of that… and I guess I am a real find huh?

    I wish you all the luck and yes, you are so lucky, so there you go! 😉

  3. I have interstitial cystitis and am also a professional patient. I’m only 23 but take more pills than my 50 something mother. I’m in pain a lot, but its an invisible disease, and the hardest thing to fight for is dignity and respect, things I have a hard time finding in a medical setting.

    I blog on basically the same issues that you do: Chronic illnesses suck.

    • I’m sorry it took so long for me to get back to you, I’ve been having a bit of a hard time lately
      I completely undetstand about the invisible disease part. Even with a tag I get looks when I use a handicap parking space. As for dignity and respect, there’s a lot of judging that goes with that and I’ve had to learn to speak up for myself, it’s a topic I’ll be posting on in the near future.
      Thanks for reading and commenting, I’ll hop over to check out your blog.

  4. Hi, I’m one of apparently many who are afflicted by multiple chronic illnesses. Only God and the love of my husband and my family helps me through. It’s been a struggle.

    I’ve got fibromyalgia, chronic microcytic anemia, rheumatoid disease, asthma, IBS, and a spinal injury. Since 2005, I’ve had two spinal surgeries, Stevens-Johnson Syndrome, MRSA (after the 1st back surgery), and two knee replacements. I am only 48! I take tons of meds and injections, and periodic blood transfusions and iron infusions.

    The worst is being unable to work. I loved my job as a systems analyst! My first husband left me after 23 years because I wasn’t bringing in any money and was confined to a wheelchair. I lost my home (temporarily, thank the Good Lord), my independence, and everything else but my Shetland Sheepdog, and had to move in with my parents. I am now married to the most wonderful man in the world, but though I made a full disclosure of my medical conditions before we married, I fear that he, too, will eventually leave me and I’ll be alone.

    • I’m truely sorry for all that you are going through but what a blessing to have someone in your life that loves you for you. I hope you can find some support here and that you come back. Makes you feel a little less alone in the world. I will be actively praying for you and yours. I know this isn’t the life we’ve planned for ourselves and my constant prayer live my life with as much dignity and grace as possible

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